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Keith Hall Memorial Fund

Keith Hall

In July 2017, the Tuberous Sclerosis Alliance Board of Directors established the Keith Hall Memorial Fund to honor and pay tribute to Keith Hall - an adult with TSC who participated extensively in several TS Alliance volunteer capacities and a “gentle giant” to so many people who knew him.  Keith passed away July 23, 2017 after a battle with cancer, but he leaves behind an incredible legacy of caring for others and inspiring hundreds of children, teens and adults with TSC to embrace life and live it to the fullest, despite any challenges they may face.

Thanks to a generous $100,000 matching grant from the TSC Exploration Fund, your gift to the Keith Hall Memorial Fund will be matched dollar for dollar through December 31, 2017.

As an adult with TSC, Keith participated extensively in the TS Alliance's Adult Task Force and Outreach Committee, and he chaired the board’s Strategic Planning Committee. In 2014 during the TS Alliance’s 40th anniversary, Keith served as Chair of the TS Alliance Board of Directors. He earned an MBA from the University of Connecticut and was a Transportation Supervising Engineer for the Connecticut Department of Transportation.  In addition, Keith was active in advocating for people with disabilities, raising awareness about the issues faced by adults with TSC and participating in clinical trials.  He lived in East Lyme, Connecticut with his wife Andrea and two children, Brandon and Marissa.

During his tenure as a volunteer, community leader and board member at the TS Alliance, Keith’s major long-term concerns and goals included:

  • Addressing the needs of adults with TSC
  • Living with kidney involvement
  • Increasing participation to the TSC Natural History Database
  • Donating tissue for research
  • Making involvement in clinical trials easy for anyone
  • Investing in TSC research grants

The Keith Hall Memorial Fund will be used to establish the Keith Hall Research Grant Award. This award will be given annually in an area of research that aligns with Keith’s interests.

“My dearest friend, you are so many things to me...a leader, a protector, a shield, a superhero, courageous, witty, caring, compassionate, heart of gold, kind, thoughtful, a giver, a fighter to the end...I could go on. You are loved by so many near and far. For the last 10+ years, you have been the support for so many lives that you touched, not only in your personal and professional life, but those in the TSC community.  Goodbyes are not forever, are not the end; it simply means I'll miss you until we meet again.” —  Jennifer Waldron

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