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Keith Hall Memorial Fund

Keith Hall

In July 2017, the Tuberous Sclerosis Alliance Board of Directors established the Keith Hall Memorial Fund to honor and pay tribute to Keith Hall - an adult with TSC who participated extensively in several TS Alliance volunteer capacities and a “gentle giant” to so many people who knew him.  Keith passed away July 23, 2017 after a battle with cancer, but he leaves behind an incredible legacy of caring for others and inspiring hundreds of children, teens and adults with TSC to embrace life and live it to the fullest, despite any challenges they may face.

Thanks to a generous $100,000 matching grant from the TSC Exploration Fund, your gift to the Keith Hall Memorial Fund will be matched dollar for dollar through December 31, 2017.

As an adult with TSC, Keith participated extensively in the TS Alliance's Adult Task Force and Outreach Committee, and he chaired the board’s Strategic Planning Committee. In 2014 during the TS Alliance’s 40th anniversary, Keith served as Chair of the TS Alliance Board of Directors. He earned an MBA from the University of Connecticut and was a Transportation Supervising Engineer for the Connecticut Department of Transportation.  In addition, Keith was active in advocating for people with disabilities, raising awareness about the issues faced by adults with TSC and participating in clinical trials.  He lived in East Lyme, Connecticut with his wife Andrea and two children, Brandon and Marissa.

During his tenure as a volunteer, community leader and board member at the TS Alliance, Keith’s major long-term concerns and goals included:

  • Addressing the needs of adults with TSC
  • Living with kidney involvement
  • Increasing participation to the TSC Natural History Database
  • Donating tissue for research
  • Making involvement in clinical trials easy for anyone
  • Investing in TSC research grants

The Keith Hall Memorial Fund will be used to establish the Keith Hall Research Grant Award. This award will be given annually in an area of research that aligns with Keith’s interests.

“My dearest friend, you are so many things to me...a leader, a protector, a shield, a superhero, courageous, witty, caring, compassionate, heart of gold, kind, thoughtful, a giver, a fighter to the end...I could go on. You are loved by so many near and far. For the last 10+ years, you have been the support for so many lives that you touched, not only in your personal and professional life, but those in the TSC community.  Goodbyes are not forever, are not the end; it simply means I'll miss you until we meet again.” —  Jennifer Waldron

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Your gift is very much appreciated and may be tax deductible pursuant to IRC §170(c) . A copy of our latest financial report may be obtained by writing to Tuberous Sclerosis Alliance, 801 Roeder Road, Suite 750, Silver Spring, MD 20910, calling 800-225-6872 or visiting www.tsalliance.org/about-us/our-results. The Tuberous Sclerosis Alliance has been formed to find a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. If you are a resident of one of these states, you may obtain financial information directly from the state agency: FLORIDA A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, 1-800-435-7352 (800-HELP-FLA) WITHIN THE STATE OR VISITING www.800helpfla.com. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. Florida Registration #CH3286; GEORGIA - A full and fair description of the programs of the Tuberous Sclerosis Alliance and our financial statement summary is available upon request at the office and phone number indicated above; MARYLAND For the cost of copies and postage, Office of the Secretary of State, State House, Annapolis, MD 21401; MISSISSIPPI The official registration and financial information of the Tuberous Sclerosis Alliance may be obtained from the Mississippi Secretary of State’s office by calling 1-888-236-6167. Registration by the Secretary of State does not imply endorsement; NEW JERSEY INFORMATION FILED WITH THE ATTORNEY GENERAL CONCERNING THIS CHARITABLE SOLICITATION AND THE PERCENTAGE OF CONTRIBUTIONS RECEIVED BY THE CHARITY DURING THE LAST REPORTING PERIOD THAT WERE DEDICATED TO THE CHARITABLE PURPOSE MAY BE OBTAINED FROM THE ATTORNEY GENERAL OF THE STATE OF NEW JERSEY BY CALLING (973) 504-6215 AND IS AVAILABLE ON THE INTERNET AT http://www.state.nj.us/lps/ca/charfrm.htm. REGISTRATION WITH THE ATTORNEY GENERAL DOES NOT IMPLY ENDORSEMENT; NEW YORK Office of the Attorney General, Department of Law, Charities Bureau, 120 Broadway, New York, NY 10271; NORTH CAROLINA FINANCIAL INFORMATION ABOUT THIS ORGANIZATION AND A COPY OF ITS LICENSE ARE AVAILABLE FROM THE STATE SOLICITATION LICENSING BRANCH AT 1-888-830-4989. THE LICENSE IS NOT AN ENDORSEMENT BY THE STATE; PENNSYLVANIA The official registration and financial information of the Tuberous Sclerosis Alliance may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999. Registration does not imply endorsement; VIRGINIA Virginia State Office of Consumer Affairs, Department of Agricultural and Consumer Services, PO Box 1163, Richmond, VA 23218; WASHINGTON Charities Division, Office of the Secretary of State, State of Washington, Olympia, WA 98504-0422, 1-800-332-4483; WISCONSIN a financial statement of the Tuberous Sclerosis Alliance disclosing assets, liabilities, fund balances, revenue, and expenses for the preceding fiscal year will be provided upon request; WEST VIRGINIA Residents may obtain a summary of the registration and financial documents from the Secretary of State, State Capitol, Charleston, WV 25305. Registration with any of these state agencies does not imply endorsement, approval or recommendation by any state.