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Dee Triemer Memorial Fund

Dee Triemer

In May 2015, the TS Alliance Board of Directors established the Dee Triemer Memorial Fund to honor and pay tribute in a meaningful way to Dee Triemer – a TSC mom and advocate as well as a long-time TS Alliance volunteer and staff member.  Dee passed away May 19, 2015, but her legacy, tireless efforts and achievements will live on through this fund.

Because Dee was a true champion of the TSC community, gifts to the Dee Triemer Memorial Fund will be used to:

  • Provide immediate support to newly diagnosed families and individuals;
  • Train the next generation of community leaders and volunteers, whom the TS Alliance relies on as local ambassadors; and
  • Support research that involves the TSC community voice, such as patient-reported outcomes.

In 2002, Dee and her then-husband moved from Florida to the Atlanta area with their four children shortly after her daughter, Ashley, was diagnosed with tuberous sclerosis complex (TSC). Dee quickly became a dedicated advocate for her daughter and others with TSC.  She established the TS Alliance Chapter in Tampa before moving to Georgia, where she helped organized the first Step Forward to Cure TSC walkathon in 2003 to help raise funds for research and community programs in support of the TS Alliance.

After filling numerous volunteer roles with the TS Alliance and being named a 2007 Volunteer of the Year, Dee joined the TS Alliance staff in 2008 as Community Outreach Manager.  She was later named Director of Special Events and Corporate Partnerships, leading the TS Alliance’s special event and community fundraising efforts.  She oversaw the national Step Forward to Cure TSC program, which raised millions during her tenure.  Dee also directed the TS Alliance’s signature event, Comedy for a Cure.  

Dee truly demonstrated that one person can make an impactful difference – as a mother, a volunteer, an advocate and eventually a staff member.  She literally touched thousands of lives.

“On March 15, 2002, my world grew larger, my eyes opened wider, and now every day I try to make a difference.  My husband asked me once why I was doing all this. It’s simple I said.  I want Ashley and my other children to be proud. I didn’t shrink and cry. I did something. That was my strength – my way of controlling what can’t be controlled.” – Dee Triemer

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What is this?
Your gift is very much appreciated and may be tax deductible pursuant to IRC §170(c) . A copy of our latest financial report may be obtained by writing to Tuberous Sclerosis Alliance, 801 Roeder Road, Suite 750, Silver Spring, MD 20910, calling 800-225-6872 or visiting www.tsalliance.org/about-us/our-results. The Tuberous Sclerosis Alliance has been formed to find a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. If you are a resident of one of these states, you may obtain financial information directly from the state agency: FLORIDA A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, 1-800-435-7352 (800-HELP-FLA) WITHIN THE STATE OR VISITING www.800helpfla.com. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. Florida Registration #CH3286; GEORGIA - A full and fair description of the programs of the Tuberous Sclerosis Alliance and our financial statement summary is available upon request at the office and phone number indicated above; MARYLAND For the cost of copies and postage, Office of the Secretary of State, State House, Annapolis, MD 21401; MISSISSIPPI The official registration and financial information of the Tuberous Sclerosis Alliance may be obtained from the Mississippi Secretary of State’s office by calling 1-888-236-6167. Registration by the Secretary of State does not imply endorsement; NEW JERSEY INFORMATION FILED WITH THE ATTORNEY GENERAL CONCERNING THIS CHARITABLE SOLICITATION AND THE PERCENTAGE OF CONTRIBUTIONS RECEIVED BY THE CHARITY DURING THE LAST REPORTING PERIOD THAT WERE DEDICATED TO THE CHARITABLE PURPOSE MAY BE OBTAINED FROM THE ATTORNEY GENERAL OF THE STATE OF NEW JERSEY BY CALLING (973) 504-6215 AND IS AVAILABLE ON THE INTERNET AT http://www.state.nj.us/lps/ca/charfrm.htm. REGISTRATION WITH THE ATTORNEY GENERAL DOES NOT IMPLY ENDORSEMENT; NEW YORK Office of the Attorney General, Department of Law, Charities Bureau, 120 Broadway, New York, NY 10271; NORTH CAROLINA FINANCIAL INFORMATION ABOUT THIS ORGANIZATION AND A COPY OF ITS LICENSE ARE AVAILABLE FROM THE STATE SOLICITATION LICENSING BRANCH AT 1-888-830-4989. THE LICENSE IS NOT AN ENDORSEMENT BY THE STATE; PENNSYLVANIA The official registration and financial information of the Tuberous Sclerosis Alliance may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999. Registration does not imply endorsement; VIRGINIA Virginia State Office of Consumer Affairs, Department of Agricultural and Consumer Services, PO Box 1163, Richmond, VA 23218; WASHINGTON Charities Division, Office of the Secretary of State, State of Washington, Olympia, WA 98504-0422, 1-800-332-4483; WISCONSIN a financial statement of the Tuberous Sclerosis Alliance disclosing assets, liabilities, fund balances, revenue, and expenses for the preceding fiscal year will be provided upon request; WEST VIRGINIA Residents may obtain a summary of the registration and financial documents from the Secretary of State, State Capitol, Charleston, WV 25305. Registration with any of these state agencies does not imply endorsement, approval or recommendation by any state.