Please Support Me...
I will be participating in the SuperHero 5kK/10K Dash, an event designed to raise funds in support of those with ALS throughout our region. I am reaching out to you because I need your help to reach my personal fundraising goal. Together, we can support those living with Lou Gehrig's Disease while spreading awareness of the urgency to find treatments that will lead to a cure.
This is a great time to get your family, friends, colleagues and neighbors involved and become SuperHeroes! Please consider the difference that you might be able to make in the lives of people affected by this disease. I would love to have you join this event as a participant or as a donor.
Why Your Help Matters...
Also referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly takes away the body's ability to walk, speak, swallow and breathe. There is currently no cure for the disease with life expectancy averaging 2 to 5 years from the time of diagnosis. As many of you know, my family has the familial ALS gene, C9ORF72. We have lost far too many members long before there time to this horrific disease.
Due to the rapid progression of ALS, the needs of someone living with the disease evolve rapidly over a short period of time. Often times insurance does not cover durable medical equipment, so The ALS Association utilizes a loan pool that allows people to access equipment at no charge. Caregivers often need a break, so The ALS Association pays for skilled home care workers to give those caregivers time. The ALS Association also provides augmentative communication devices that are critical when someone's ability to speak has been compromised.
All of these supports help individuals and families impacted by ALS live the fullest life possible, which is why I'm asking you to support my fundraising efforts. Help make a difference and donate today by clicking on the Donate key. Your gift will make you a hero in the lives of others.
Prefer to make a donation by check? Click here for a printable donation form!