Thank you for helping us to reach our Walk to Defeat ALS®fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Did you know that ALS was first discovered 153 years ago, in 1869? Lou Gehrig was diagnosed on his 36th birthday, in 1939, and died June 2, 1941. If he were diagnosed today, he would receive the same prognosis that he did 83 years ago; NO CURE. This disease continues to baffle the smartest scientists in the world.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak,swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
Primary Lateral Sclerosis (PLS), a rare neuromuscular condition that affects voluntary muscles via lesions on the brain. PLS is a progressive and degenerative disorder that typically affects functions that govern mobility, fine and gross motor skills, coordination, speaking,swallowing, and executive functions in the brain. Like ALS, there is no known cure and no known cause. Unlike ALS, PLS is not fatal although is is life-altering.
We started our PLS only support group years ago. We meet every month as friends and supporters for each other.
