I have lived with the belief that I have had ALS for 6 years now. I have had wonderful care at the ALS clinic in Tampa and have had IV treatments 10 days a month in Venice, my hometown community. This fall my healthcare team decided that since I have had incredibly slow progression, to do a muscle biopsy. Those results, reported that I did not have ALS, but a disease called Inclusion Body Myositis. It was a true Christmas miracle for me and my family. This disease while survivable is still a degenerative muscle disease with no treatment or cure. I feel incredibly blessed because so many need to hear that ALS is survivable
I am just as committed to walking(or in my case riding a scooter) to raise money to provide others with the hope and help to face their journey with ALS. Our team, Defeet ALS has participated for 5 years in this walk and I would be honored to have you join our team this year. With your help, we will be able to make a difference in the lives of people affected by this disease.
Every 90minutes a person in this country is diagnosed with ALS and every 90 minutesanother person will lose their battle against this disease. ALS occursthroughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s whywe’re participating in the Walk to Defeat ALS. To bring hope. To raiseawareness. To provide resources and services to families free of charge. Tohelp unlock the mystery of ALS and find the key to treatments a cure. Will youjoin us?
ABOUT ALS
Amyotrophiclateral sclerosis (ALS) is a progressive, fatal neuromuscular disease thatslowly robs the body of its ability to walk, speak, swallow and breathe. Thelife expectancy of a person with ALS averages 2 to 5 years from the time ofdiagnosis.
ALS canstrike anyone. Presently there is no known cause of the disease, yet it stillcosts loved ones an average of $250,000 a year to provide the care peopleliving with ALS and their families need. Join the movement to provide help andhope today!