Team Patti
Help us raise money to find a cure for ALS!
Our story
Event: | Syracuse Walk |
Date: | Saturday, September 28, 2024 |
Team: | Team Patti |
9/19/2023 UPDATE: THANK YOU SO MUCH FOR HELPING TEAM PATTI EXCEED OUR $5000 GOAL - YOU'RE AWESOME !!!
Hello family and friends,
Molly and I, along with Team Patti and hundreds of other walkers, will be participating in the 2023 Walk to Defeat ALS on Saturday morning September 23rd at 11 am (9:30 registration) at Long Branch Park in Liverpool.
The Walk to Defeat ALS raises funds to support those in our community affected by ALS and spreads awareness of the urgency to find treatments and a cure. Patti and I received great help and support from our local ALS Association during Patti’s ALS journey. Patti participated in every available ALS clinical trial she was eligible for in our area to help researchers find effective treatments to manage symptoms and to find a cure.
This walk is our opportunity to honor Patti and remember the wonderful life we shared together, while helping others affected by ALS. Patti’s courageous ALS journey to remain positive and seek joy every day despite her rapidly progressing, debilitating, terminal ALS symptoms provides an awesome example of how each of us should strive to live each day and respond to challenges in our own lives.
Choose joy! Every day may not be good, but find something good in every day. Learn to be happy right now, otherwise you’ll run out of time …
Please consider walking joyfully with Team Patti and donating to a Team Patti member or joining Team Patti as an active fundraiser to help defeat ALS. Joining Team Patti as an active fundraiser is encouraged and appreciated. Note, you are not required to sign up as a Team Patti member to walk with us or donate to someone on our team. Please also share this information with people you know to spread the word about ALS and the continued support needed to find a cure for this devastating, terminal disease.
Thank you in advance for your generous Team Patti support to help us reach (and hopefully exceed) our fundraising goal. Together we can make a difference in the lives of those affected by ALS.
Please contact me (315-247-8402) if you have any questions.
Jim
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
The key to a cure depends on our ongoing support to defeat ALS. That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services free of charge to people with ALS and to their families. To help unlock the mystery of ALS and find the key to treatments and a cure so no one ever hears the words “You Have ALS” without an available cure. Please join our movement to provide hope and help today!
ABOUT ALS
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. Patti’s less common and more aggressive type of ALS progressed very quickly and she lived only 9 months after her diagnosis.
ALS can strike anyone. Presently there is no known cure for the disease and it costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families … but we can’t stop now.