Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
As most of you know, Terry was officially diagnosed with ALS in early 2010 after experiencing unexplained weakness for several years. ALS is a diagnosis made only after ruling out a host of other diseases. By the time his diagnosis was confirmed, he was already on short term disability at work. Terry's progression was very fast. He quickly lost the ability to use his hands, followed by his voice. Within six months, he was no longer able to walk. After a wonderful weekend with family and friends, on August 22, 2011, Terry died peacefully at home. Terry fought a courageous battle, leaning on his strong faith in God's ultimate plan for him. He never stopped counting his blessings - family, friends and the incredible outpouring of love.
Because we were fortunate enough to have the resources that allowed us to have equipment, Terry was able to stay involved in the world. He attended UT football games, went to beach, hosted parties and enjoyed time out in the community with his friends. This is not the case for so many ALS patients. Many are forced to remain in their homes, bed bound, totally unconnected from the world. The cost of caring for an ALS patient with the necessary care giving services and equipment averages approximately $200,000 a year. For many, the only equipment available is loaned by the ALS Association.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries. This crippling disease can strike anyone. Presently, there is no known cause of the disease, but this year, the FDA has approved Radicava™ (Edaravone), the first new treatment specifically for ALS in 22 years. The drug was approved by the FDA less than a year after Mitsubishi Tanabe Pharma Corporation submitted a New Drug Application. The only other approved treatment specifically for ALS, riluzole, was approved in 1995. While this new treatment is not a cure, the hope is that it will slow down the relentless progression of this disease for some patients.
Together we can make a difference in the lives of those affected by Lou Gehrig’s Disease. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining our team or choose a team member from the list and donate to our cause. Help make a difference and donate, or join our team in the Walk to Defeat ALS®.