Thank you for helping us reach our fundraising goal! The Center for ALS Specialty Care at Hopkins is dedicated to improving the quality of life for ALS patients, families and care partners. Studies show that care in a multispecialty ALS clinic improves both longevity and quality of life (including physical therapy, occupational therapy, palliative care and more). Each of our team members exhibits a different area of expertise to guide patients through challenges faced by those affected with this disease. We provide palliative care, genetic testing counseling, physical therapy, occupational therapy, nutritional evaluations, speech and swallowing assessments, as well as respiratory evaluations and more.
Together we can make a difference in the lives of those affected by ALS. Our team is also committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause. We cannot do this without you all!
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries. The most common form of ALS (about 90%) is sporadic (not hereditary, it can affect anyone). The other form of ALS is called familial because it is hereditary/genetic. There is a 50% chance each offspring will inherit the gene mutation and may develop the disease.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments and a cure. Will you join us?
ABOUT ALS
Amyotrophic lateral sclerosis (ALS), formerly referred to as Lou Gehrig's disease, is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!