This year alone, the ALS Association has provided funding for 165 active projects in countries all over the world. A recent study from Northern Western University, in part with The ALS Association, identified the first compound that eliminates the ongoing degeneration of a diseased upper motor neurons, a key contributor to ALS. It is because of the many hard-working ALS advocates that progress is being made in pursuit of research.
Closer to home, The ALS Association, Orange County Chapter, provides families with multiple resources such as free transportation for those who do not have adequate handicapped vehicles, support groups for families, caregivers and veterans, augmentative communication devices, as well as an equipment loan program. As someone who has worked very closely with this chapter for years, we are extremely fortunate to have such an amazing group of advocates in our county. I am beyond thankful for the overwhelming support received from my Rainbow Rising family and cannot wait to continue to raise awareness for a cause so close to my heart.
With my whole heart, Miss Hailee
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.