Thank you for supporting Vermonters living with ALS and their families, friends and caregivers!
Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining Vermont Friends and Dan's Fans foro the Vermont Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
My journey as an ALS ally began when I worked at the Vermont Department of Disabilities, Aging & Independent Living and helped ALS support group members to access resources. Years later, I returned to directing community theatre with a production of Tuesdays with Morrie to benefit the ALS Association local chapter. The show took years to develop. We had no idea that my husband's and my dear friend Dan Dorso would receive his ALS diagnosis during the show run. Now I am honored to serve as Care Services Manager for Vermont and Essex, Clinton & Franklin Counties in New York State. In addition to helping individuals and caregivers with education, support and practical resources. I also serve as community liaison to the UVM ALS Clinic, promote Vermont advocacy and registry participation, and organize our annual Symposium (coming up on October 27, 2023 on Zoom!).
Today Dan's Fans becomes a team for all Vermont Friends who want to support Vermonters but cannot organize a team themselves. You are welcome on this Team and at the Vermont Walk. Thanks to you, Care Services remain free and confidential to everyone in need while we support research toward our ultimate goal - a World Without ALS.
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
ABOUT ALS
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!
