Welcome to Jacque's HA WALK Page
As many of you know, Amiyah was born with a rare medical condition called Vein of Galen Malformation. When she was a little over a month old, she went through two procedures, called an emobilization to treat her brain malformation. Her head size was slowly increasing prior to her emobilization, and when we thought that emobolization would help her head get smaller, unfortunately it did not. A few days following her emobilization, through MRI, the doctor's saw an infarct, which revealed that she had 2 mini strokes, and her brain was starting to get swollen, and needed immediate surgery. The doctor's placed a temporary Ommaya reservoir to tap out fluid every day to relieve the pressure that was causing her brain to swell until they came to a decision to shunt her. Two days following her ommaya reservoir placement, Amiyah was diagnosed with Hydrocephalus secondary to Vein of Galen, and her neurosurgeons had inserted a VP Shunt. It’s been a little almost 9 years since her shunt has been in place, and she has been growing and achieving her milestones. She is very smart and super sassy! We have been blessed and so thankful every day that Amiyah has been doing so well, and we thank God every day for continuing to watch over her.
Amiyah is my “WHY.” She is WHY I walk every year, and she is the reason WHY I have co-chaired the HA Walk this year! Please donate and help me reach my goal and our Team goal! No amount is too little or too small. Your donation is greatly appreciated, and will go far in helping finding a cure for those who are living with hydrocephalus.
With appreciation,
Jacque
If you think this page contains objectionable content, please inform the system administrator.